As people with disability have suffered, and continue to suffer discrimination and prejudice in society, and in the workplace, it is understandable to hear the frustration. Frustration about inequality, channelled positively, can lead to activism, which can take many forms. Social media has made activism, advocacy and awareness-raising much easier, but it is not always positive. Recent campaigns for issues such as the ‘naked selfie’ for cancer demonstrates that activism can be positive and that social media can be a force for real change. What can the community of people with disabilities do to emulate a positive use of social media?
Fund and Awareness Raising
The Ice Bucket Challenge of 2014 for ALS/MND is a superb example of raising awareness of a debilitating illness. Charity information, websites and campaigns can only go so far, and people must want to find out information in the first place about a particular issue, and information may often come off as ‘marketing speak’. That’s where a novelty action such as the ice bucket challenge can be far more engaging. The action of dousing oneself in icy water has been compared to the physical effects of ALS/MND on the body.
One of the greatest additions to internet culture in recent years has allowed anybody to become a writer. Free blog sites such as wordpress, blogger, live journal and blog.com have allowed unprecedented access for people to tell their story to the world. That’s what inspired Eva Markvoort (a young lady who suffered from Cystic Fibrosis until her death in 2010) to live her life to the full and encourage others to do the same. She pursued an acting career, not letting her disability or the persistent rejections of directors expressing concern about the impact of her illness on the role for which she was applying, get in the way. Her death led to a discussion on Cystic Fibrosis in the Canadian Parliament, the first time the subject had come up in six years. Those who do not or cannot write are turning to videos to share their experience. One of the most prolific vloggers (the term for a video blogger) on YouTube is Robyn Lambird, a person living with cerebral palsy she vlogs about her experiences of CP, fashion, education, social attitudes and any other subject that takes her fancy.
In a bid to make social media more accessible, and to provide a global support network for the widest range of people with disabilities, there is now a dedicated social network. DisabledCommunity.net links together people all over the world, not just those with disabilities, but also their carers. It aims to do for people with disability what Facebook has done for practically everyone, providing a positive platform for people to meet and stay in touch no matter where in the world they are.
What’s Your Message?
The key here is positivity. People respond to a positive spirit, the novelty, an engaging medium and attitude. Charities do a lot of great work in raising funds and awareness for causes but that is only half the story; the internet provides a great opportunity for people with disabilities to aid in breaking down the barriers, to show that the person is not the disability, to share real stories of real lives.
Let us know about your blog… We’re interested to see who amongst you has been blogging, and how you’ve approached thinking about how to change attitudes towards people with a disability, and how far your thoughts have reached. Have you stimulated a positive discussion about inclusion, and the expanding of ‘workplace diversity policy’ to include people with a disability? Contact us at firstname.lastname@example.org and let us know what you’re doing in the world of blogging, or v-logging.